Support

 

We are here to support all families touched by Fetal Anti-Convulsant Syndromes. OACS is here to ensure that people living with FACS and their families will experience better recognition, improved public health services, and support. 

 

Fetal Anti-Convulsant Syndrome is caused when the anti-convulsant medicine a woman takes during pregnancy affects the foetus.  It is not yet understood why this affects some children and not others, but it is believed may be due to a genetic disposition.

How We Can Help

We are here to support all families impacted by Foetal Anti-Convulsant Syndromes (FACS). Foetal Anti-Convulsant Syndrome is caused when the anti-convulsant medicine a woman takes during pregnancy affects the foetus.

FVS - Foetal Valproate Syndrome is a range of devastating birth defects that can occur from the side effects of taking an anti-epilepsy or other drugs which contain valproic acid (VPA) during pregnancy. Despite studies dating back to the 1980’s, both industry and national governments across the world (including Ireland), were slow to act on overwhelming evidence of the side effects of such drugs, including Epilim.

Have you had your Annual Valproate Review from your GP or Neurologist?

If you haven't please click on the link below and contact you Health Care Professional for a medication review.

Do not stop taking your medication without talking to a Epilepsy Health Care Specialists!

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Learn More About Epilepsy Here!

 IMMDS Review into #Valproate

#First Do No Harm

"We welcome the review report and thank them for the commitment to finding the truth and putting together comprehensive changes to the health and social care.

“What we should remember is this is just the beginning and for any justice for our children we require a task force to comprise of, at least one representative from each patient groups, to set up a redress scheme that covers the social care, health, education and to secure a financial future for all victims past and present.

“Until this is achieved, we will carry on fighting and expect that all state bodies will find the lost children of Sodium Valproate from time of licensing.” 

European Medicines Agency

Latest Review

Rare Connect is a Global Support Community, set up for everyone with rare syndromes for sharing their stories with other families across the world in the same situation as you are in and making new friends along the way.

 

OACS has a growing community page you can join for free today: Fetal Anti-Convulsant Syndrome' Community  www.oacscharity.org

The information provided by OACS is to empower so that those taking anti-convulsant medicines can make informed choices about the medication that is used during pregnancy.   It is important to speak to your doctor before choosing to stop or changing any medication

© Copyright of Organisation of Anti-Convulsant Syndrome (O.A.C.S) 2/2014 Registered Charity no. 1116497