Advocating For Those With Fetal Anti-Convulsant Sydnrome:
Having a child with a complex syndrome is difficult enough, but when you include the many professionals, hospital appointments, meetings etc that are a part of the experience, life can become challenging. Not everyone understands the syndrome, yet very few have a clear perspective of it.
As a patient led organisation, we know and understand just how difficult it can be to manage, when you have to juggle so many balls in the air at any one time.
Finding PIP difficult?
PERSONALISED INFORMATION PACKS:
When someone has a Fetal Anti-Convulsant Syndrome experiences can be both similar, yet also they can be very different to another.
As a solution to this OACS have developed information packs that can be tailored to each individual.
These are available, tailored to your needs, as:
Parent Information Packs and Professional Information Packs
We can also support you as you interact with professionals, reducing the difficulties that you may be experiencing.
If we think we cannot provide you with the support you need - We will know someone who can, please give us a try by clicking on the button below:
Some Comments from Families that OACS have Helped:
"Thank you so much for writing those letters for me. It really helped me to explain my son's problems" - V.
"I have never felt so empowered. I was getting so frustrated, our hosptial was really messing us around. I mentioned it to OACS; they wrote some letters for me. The next thing I knew there was a big package through my door. The hospital had made changes in their policies so that what I experienced would never happen again to anyone!" - N.